PROTEUS — PRACTICE

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PROMs Equity Project

While evidence supports the potential effectiveness of patient-reported outcome measures (PROMs) in practice, there is a need for unique resources and support to promote PRO use in the context of caring for vulnerable and underserved populations in the United States.

To identify and address these needs, the PROTEUS Consortium formed an Advisory Group. The Advisory Group offered an opportunity for bidirectional information exchange to:

  • Improve our understanding of the facilitators of and barriers to implementing routine PRO assessments in vulnerable and underserved populations; and
  • Build capacity for PRO implementation to improve care for cancer patients who are vulnerable or underserved.

Advisory Group Meeting Outcomes

The Advisory Group identified four key barriers to implementing PROs in vulnerable and underserved populations and four categories of solutions to address these barriers. The categories of solutions included: Education and Engagement; Research; Information Technology or Technological Resources; and Incentives, Mandates, and Marketing.

An article published in The Patient ­presents the outcomes from the Advisory Group.

Infographic showing PROMS Equity Project Outcomes

Advisory Group Members

  • Andrea Pusic, MD, PROVE Center at Brigham Health
  • Andrew Vickers, PhD, Memorial Sloan Kettering Cancer Center
  • Angelique Richardson, MD, PhD, University of California in San Diego
  • Anne Marie Rainey, MSN RN CHC CPHQ, American Oncology Network
  • Bethany Sibbitt, PharmD, Kettering Health and Cedarville University School of Pharmacy
  • Betty Hamilton, MD, Cleveland Clinic
  • Billie Baldwin, MA, MSW, LCSW-C, MedStar Franklin Square Medical Center
  • Cardinale Smith, MD, PhD, Mount Sinai Health System (MSHS)
  • Eric Boakye, PhD, Henry Ford Health System
  • Esteban Barreto, PhD, MA, Massachusetts General Hospital; Harvard Medical School
  • Kriti Mittal, MD, MS , University of Massachusetts
  • Larissa Meyer, MD, MPH, FACOG, FACS, The University of Texas MD Anderson Cancer Center
  • Lauren Shapiro, MD, MS, University of California – San Francisco
  • Leah Owens , DNP, RN, BMTCN, OCN, Tennessee Oncology
  • Maimah Karmo, BA, Tigerlily Foundation
  • Mary Vargo, MD, MetroHealth Medical Center; Case Western Reserve University
  • Nadine Jackson McCleary, MD, MPH, Dana-Farber Cancer Institute
  • Rachel Peterson, PhD, NCSP, Kennedy Krieger Institute, Johns Hopkins University School of Medicine
  • Rebekah Angove, PhD, Patient Advocate Foundation
  • Ronald Chen, MD, MPH, University of Kansas Medical Center
  • Tara Kaufmann, MD, MSCE, University of Texas at Austin
  • Theresa Gillespie, PhD, MA, BSN, FAAN, Emory University School of Medicine and Winship Cancer Institute
  • Vikas Mehta, MD, MPH, Montefiore Medical Center/Albert Einstein College of Medicine
  • William Lee, RPh, MPA, FASCP, Carilion Clinic
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