A Broad and Vital Community
The PROTEUS Consortium includes representatives from key patient, clinician, research, health system, industry, policy, government, and regulatory groups from the U.S. and internationally who support the uptake and implementation of the PROTEUS Tools in trials and practice.
Please note: Participation in PROTEUS does not imply endorsement of any particular PRO tools or guidance documents.
Patient & Clinician Advocacy Groups
American Academy of Orthopaedic Surgeons
American Cancer Society
American College of Cardiology
American Heart Association
American Society for Radiation Oncology
American Society of Clinical Oncology
Canadian Association of Radiation Oncology
National Coalition for Cancer Survivorship
Oncology Nursing Society
Patient Advocate Foundation
Patient perspective
UK Kidney Association
Research, Methods & Clinical Trial Organizations
AcademyHealth
Australian Clinical Trials Alliance
Consolidated Standards for Reporting of Trials (CONSORT)
Critical Path Institute PRO Consortium
European Organization for the Research and Treatment of Cancer
Industry (GSK)
Institute for Clinical and Economic Review
International Consortium for Health Outcomes Measurement (ICHOM)
International Society for Quality of Life Research
ISPOR
Mapi Research Trust
Medical journal editor perspective
National Clinical Trials Network PRO representatives
OncoPRO Initiative
PROMs Network (UK)
Society for Clinical Trials
Standard Protocol Items: Recommendations for Interventional Trials (SPIRIT)
The Association of the British Pharmaceutical Industry (ABPI)
Health Record Systems, Payers, Funding & Government Agencies
Cancer Australia
Epic Systems Corporation
European Medicines Agency-Scientific Advice Working Party / Dutch Medicines Evaluation Board
Food & Drug Administration – Oncology Center of Excellence
Health Canada
Health Research BC
Medicines and Healthcare Products Regulatory Agency
National Cancer Institute
National Institute for Health and Care Excellence
Oracle Health Electronic Health Record
Patient-Centered Outcomes Research Institute
Payer perspective
Purchaser Business Group on Health
Universities & Health Systems
AmbuFlex Center for Patient Reported Outcomes (Denmark)
Amsterdam University Medical Center & the KLIK PROM Portal
Cancer Care Alberta
Centre for Patient Reported Outcomes Research, University of Birmingham (UK)
Children’s Hospital of Philadelphia
Dartmouth Health and The Dartmouth Institute for Health Policy and Clinical Practice
Emory University
Henry Ford Health
Kettering Health
MD Anderson
Memorial Sloan Kettering Cancer Center
Mount Sinai Health System
Northwestern University
PROMPT-Care (Australia)
PROVE Center at Brigham Health
Thomas Jefferson University
University of California-Los Angeles
University of California-San Francisco
University of Michigan
University of North Carolina at Chapel Hill and UNC Health
University of Rochester
University of Utah Health
West Virginia University
*Participating in PROTEUS does not imply endorsement of any particular PRO tools or guidance documents.
