Learning Health Network

Increasingly, patient-reported outcome (PRO) measures are being collected to monitor how patients are doing and to inform their care. While evidence supports the potential effectiveness of using PROs in clinical practice, barriers prevent broad implementation.

Our Learning Health Network provides a forum to share experiences and lessons learned regarding the use of PROs in oncology clinical practice across the United States. The PROTEUS Learning Health Network includes 10 projects, each of which is supported by a grant from Pfizer Inc., along with engagement from the Consortium as a whole.

Network Participants

The Learning Health Network includes the following project teams:

• Development of a PRO implementation toolkit for radiation oncology, The University of Texas M. D. Anderson Cancer Center, Aileen Chen (Principal Investigator)
• Implementing a Care Delivery Model to Improve PRO Guided Care for Patients with Brain Tumors, West Virginia University, Sonikpreet Aulakh (Principal Investigator)
• Testing Two Implementation Strategies in Collecting ePRO among Multiple Myeloma Patients, Thomas Jefferson University, Kuang-Yi Wen (Principal Investigator)
• Oncology pharmacist-facilitated PROM monitoring in UNC cancer clinics, University of North Carolina, Angela Stover and Debbie Liang (Multiple Principal Investigators)
• Optimizing Implementation of Universal Psychosocial Screening to Improve Health Equity in Pediatric Cancer, The Children’s Hospital of Philadelphia, Lamia Barakat (Principal Investigator)
• Optimizing Postoperative Cancer Care Through Personalized Remote Symptom Monitoring, Memorial Sloan-Kettering Cancer Center, Jennifer Cracchiolo (Principal Investigator)
• Patient-Reported Outcomes During and Post-Radiation to Assess and Intervene on Toxicity in Patients with Head and Neck Cancers, University of Michigan, Michelle Mierzwa (Principal Investigator)
• Real-World ePROs in Cancer Patients to Inform Consensus Alert Threshold Guidelines and Escalation Algorithms, University of California, San Francisco, Anobel Odisho (Principal Investigator)
• Supporting Electronic Evaluation of Symptoms for Anxiety and Depression After Childhood Cancer Treatment (SEE-SAD-ACT), Emory University, Jordan Marchak (Principal Investigator)
• Use of PROMs to Improve Patient-Centered Monitoring and Management in Transplant or Cellular Therapy, Dartmouth Hitchcock Clinic, Kenneth Meehan (Principal Investigator)